Help Make Fragile X
a Household Name
Every family deserves answers.
Your gift today helps raise awareness, speed up diagnoses, and support life-changing research for Fragile X syndrome and the Fragile X premutation.
Your Support Brings Answers to Families Searching for Hope
Meet Javier. For five years, his family searched for answers — endless doctor visits and tests that led nowhere. At age six, Javier was finally diagnosed with Fragile X syndrome. Early intervention has helped him make incredible progress — but his story reminds us how vital timely diagnosis is.
Meet Jenny and Joe. Jenny struggled with infertility and irregular periods for years, unaware she carried the Fragile X premutation. Genetic testing revealed not only her diagnosis but also helped her father, Joe, understand the cause of his tremor — Fragile X-associated tremor/ataxia syndrome (FXTAS).
They are two of more than 1.5 million people in the U.S. living with the Fragile X premutation — most of whom don’t even know it.
Your support helps ensure that families like Javier, Jenny’s, and Joe’s get the answers, care, and community they need.
Your Gift at Work.
Every dollar helps bring awareness, education, and research one step closer to ensuring no one faces Fragile X alone.
When you give today, you’re doing more than donating — you’re helping families find answers, empowering doctors with knowledge, and fueling research that brings us closer to effective treatments.
“We finally recieved a diagnosis to explain our son's developmental delays — and with that knowledge came hope.”
​
Activity
We are honored to hold the highest ratings with third-party non-profit certification organizations GuideStar and Charity Navigator.
 |
   |